We are honored to welcome a very special family and organization to be a part of this year’s CRSS Race for Hope. The Mustos will be serving as race starters this year with Dr. Lee McElroy of UAlbany. They also have a team that will be participating in this year’s 5K.
Maddie’s Story or visit Maddie’s Mark
Madeline Musto, age five, an independent, kind and mature kindergartener was diagnosed with an inoperable brain stem tumor – known in the medical world as DIPG. In moments, our visions of boyfriends, proms, driving lessons and grandchildren became thoughts of how long, how come and how can we prepare our baby for heaven? Our doctor said, “Enjoy this time, even though it is hard, make the best of it. You will have a LONG time later to grieve and be sad.” This statement, in a way, determined our state of mind when we left the hospital. Life would be lived the way Madeline would love, filled with family, friends, crafts and adventures – a life of ‘best days ever’.